Christopher McAnulty, 15, has quadriplegic cerebral palsy alongside dystonia – a neurological movement disorder that causes painful muscle contractions and involuntary spasms across his body.

His condition affects his entire body, particularly his arms, neck and jaw, significantly affecting his ability to communicate, sleep, eat and maintain posture.

Christopher McAnulty with mum, Clare (Image: EACH)

In recent months, Christopher underwent Deep Brain Stimulation (DBS), a specialised surgical procedure designed to help manage his worsening dystonia.

The operation involved implanting electrodes into his brain, connected to a battery-powered device under the skin that delivers electrical pulses to disrupt the abnormal signals causing his symptoms.

His mum, Clare, of Gooderstone, near Swaffham, said the family had been preparing for the surgery for years alongside specialists at the Evelina Children’s Hospital in London.

Christopher McAnulty, who has quadriplegic cerebral palsy and dystonia, has undergone life-changing surgery (Image: EACH)

“It went well, and he recovered quicker than we expected,” she said.

“There were some complications with a wound infection and side-effects, but we’re hopeful those hurdles are now behind us.

“It won’t cure his condition, but we’re already seeing small positive signs. We hope it will prevent further deterioration and give him more freedom, particularly with communication and movement.”

Christopher McAnulty with dad, Martin (Image: EACH)

Christopher, who was also born profoundly deaf and has bilateral cochlear implants, is described by his family as “incredibly bright” and “nearly always smiling” despite the daily challenges he faces.

Alongside his medical journey, the family rely heavily on support from East Anglia’s Children’s Hospices (EACH), particularly its Norfolk hospice, The Nook, where Christopher has been receiving short break care since 2020.

Clare says it makes an invaluable difference, giving her and husband Martin an opportunity to press pause and spend time with daughters Bronagh and Ciara.

Christopher McAnulty with his family (Image: EACH)

“Providing care 24/7 is hard and, at times, relentless,” she said. “To have somewhere he can go where we’ve got full confidence he’ll be looked after is priceless."

“He loves being around people, the attention he gets, and seeing familiar staff and friends. They really understand him and bring out his sense of humour.”

© Norwich Evening News