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When Waiting Becomes Part of Illness

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17.07.2026

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Waiting is a healthcare experience that shapes well-being, trust, and recovery.

Lack of information encourages fear, worry, and worst-case thinking.

Families and caregivers experience uncertainty and emotional strain too.

Compassionate communication can significantly reduce the burden of waiting.

Imagine being told there may be something seriously wrong with you or your child, only to learn that you must wait weeks or months for answers. Within healthcare systems, waiting is often treated as a logistical problem. For patients and caregivers, it can be deeply distressing. The psychological burden of illness does not begin with diagnosis or treatment. For many people, it begins with the wait for both.

One of the Hardest Parts of Living with a Chronic Illness Is the Waiting

As a psychologist and lifelong congenital heart patient, I have spent much of my life waiting. From infancy, I have spent countless hours waiting by the phone for doctors to call, in outpatient clinics for appointments, in accident and emergency care, and for the results of tests, procedures, and surgeries. During hospital admissions, I have to wait for my slot on the surgical list, for cannulas and stitches to be removed, for pain relief, for discharge letters, and for permission to finally go home. Much of that waiting occurs when I am frightened, unwell, vulnerable, and uncertain about what might happen next. Even as a young child, for some healthcare procedures and surgeries, I had to wait without the soothing presence of loved ones. From a psychological perspective, waiting can be profoundly threatening.

The Nervous System Doesn't Wait Calmly

People can often cope remarkably well with difficult news. What is typically much harder is uncertainty. Our brains are prediction machines, constantly scanning the environment for signs of safety or threat. When information is incomplete, the mind naturally attempts to fill in the gaps. What if the test result is bad? What if my condition is getting worse? What........

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