On Mosaico TV, Roni Gotthilf hosted an interview in October 2024 about the Rare Genetic Diseases Program. Despite the date, the subject remains highly relevant for raising community awareness.

• Miriam Vasserman, Vice President of FISESP • Vivian Lederman, Biologist • Renato Vaisbih, Journalist and Press Officer at StandWithUs • Beni Vaisbih, Renato’s son and living with a rare disease

Beginning of the Conversation

Miriam Vasserman shared the story of a mother seeking support. From this need, the program was born voluntarily, with the........

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