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Why Parents Shouldn't Grieve Their Autistic Children

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monday

A friend whose daughter is autistic recently told me that her therapist encouraged her to mourn the daughter she didn’t get (i.e., the neurotypical one). My friend struggles to parent her daughter, who is not quite the companion she had envisioned when she was pregnant. The imagined child was going to be different, and the task at hand was to grieve.

There is no doubt that raising a disabled child makes parenting more challenging. Things we were counting on, like an easier lifestyle, a supportive community, or clear school choices, are no longer guaranteed. But it’s vital to point out that even though many of these experiences may not happen, it’s not the child we are mourning. We are grieving our own expectations, the systems around us, and the stigma, uncertainty, and stress of raising a neurodivergent child in a neurotypical world.

This misplaced grief narrative, advocated by my friend’s therapist, stems from a deficit-based framework that views autism as a loss. The grief narrative becomes a therapy trope and a developmental mandate for the parent to mourn.........

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