Schoolgirl with rare condition inspires medical bracelet creation to help others
Within three hours of being born, newborn Amiyah-Leigh began having seizures while her blood sugars became unrecordable.
The family, from Attleborough, was immediately thrown into a terrifying and emotional rollercoaster as their baby girl was rushed to NICU where she spent five weeks fighting for her life.
Eventually, doctors discovered she had a rare and lifelong condition called panhypopituitarism, which means her body does not produce any hormones.
The condition cannot be cured and she will require medication and monitoring for the rest of her life.
It was this diagnosis which prompted her parents to find a way to ensure her medical needs were met when they were not there, such as at school or on school trips.
Scott and Jess Mardon's daughter Amiyah-Leigh was born with a rare, lifelong condition (Image: Supplied)
It led them to create the Tapiie WristBit - a bracelet with an embedded microchip and QR code that can be scanned to show a person's medical conditions, sending an alert to their emergency contacts.
"As her parents, we quickly realised how critical it is for medical professionals to have instant access to accurate information, especially during emergencies," Mr Mardon said.
"Every time we met a new doctor, paramedic or nurse, we had to explain her condition from scratch. We kept asking ourselves 'what if something happened and we weren’t there to explain her condition?'
"That question became the seed."
The Tapiie WristBit (Image: Supplied)
The couple set up Tapiie alongside Shaun Mundey, from Wymondham.
It works by medical information being uploaded to its system by parents or carers, allowing them to upload as much or as little personal and medical data as they feel comfortable with.
In an emergency, the bracelet can be scanned by anyone with a smartphone, helping them to share information about the person's specific medical conditions with 999 call handlers and paramedics.
Once scanned, Tapiie will immediately send an SMS or email alert to their emergency contacts with the precise location of where the bracelet was tapped.
The medical-grade silicone bands are being trialled at Parkside special needs school in Norwich, Drake school in Thetford, and Wicklewood school near Wymondham.
They have also given 500 Tapiie bracelets to the Jenny Lind children's department at the Norfolk and Norwich Hospital to hand out to patients.
"The profile opens on the person's device and shows their key medical information, including their name, age, medical conditions and any uploaded care plans or documents, as well as their emergency contacts," said Mr Mardon, who has a background working in IT and web application development.
Shaun Mundey (Image: Supplied)
Mr Mundey added: "If you saw someone unconscious, for example, you would tap the bracelet with your phone and you would then have enough information to really help the 999 call handler.
"This would be valuable information which they can then give to the paramedic to come out, maybe with specific medication or just general knowledge of what they're driving out to.
"Most of the time, paramedics don't know what they're going to because the information the call handlers get is so basic. When paramedics arrive, they could also tap the bracelet themselves.
"In a lot of cases, we hope that because the paramedics are aware of what the person's condition is, they can be treated on the street or wherever they have collapsed. Then, they might not have to go to hospital and take up a bed that the NHS could use for somebody else."
Tapiie launches to the public in May, with the medical bracelets on sale for an early bird price of £9.99 (normally £14.99), which includes email alerts.
People can also pay £4.99 a month for a Tapiie+ subscription, which includes SMS alerts for four emergency contacts.
The company is also looking to launch other products, including the Tapiie StickBit, which is a sticker with a QR code that sticks to helmets of motorcyclists, cyclists and rock climbers.
Another product, called the Tapiie ClipBit, is a medical strap for people's smart watches.
