STROBEL: UNDERSTANDING STELLA — Variety girl has her own language
“I don’t hide my heart, I wear it on me” — Lizzo, Special
Subscribe now to read the latest news in your city and across Canada.
Subscribe now to read the latest news in your city and across Canada.
Create an account or sign in to continue with your reading experience.
Don't have an account? Create Account
For most of us, communication is easy. We talk. People nod. Message sent and received.
Then there’s Stella Butler, 6.
“Stella Bella,” as she’s known at home and in her broader Variety Village family, cannot speak, or walk, or feed herself or use her hands much. Instead, she “talks” in her own way. Those who know her, understand her. You just have to learn “Stella Bella.”
Let’s start with her world-class stink eye. Her hairy eyeball. Her power glower.
It screams distain, disgust, displeasure, distaste. All the Ds.
She deploys it when her dad, Jeff, plays hard rock, for instance. Thus, Stella’s stink eye can mean, “Turn off that racket!” Lizzo, Dua Lipa and the Weeknd, on the other hand, elicit a knowing grin and something akin to bopping to the beat.
Tired, Stella? She rubs her eyes, puts her head down and cries.
Hungry? She puts her hands in her mouth.
When I meet Stella at the front door of Variety Village, her wheelchair propelled by mom Clara, the little girl’s blue eyes sparkle like Christmas baubles. The look says, “I’m in my happy place.”
“She lights up when she comes here,” says Clara.
Midway through our interview, Stella fidgets, grumbles and gazes about. Which means what?
“She’s bored,” says her mom. “She saying, ‘I’m done with this.’”
Ouch. I’ll try to ask more riveting questions.
So, you see, Stella says what she thinks, without words. Words such as Rett syndrome, a genetic hiccup that affects one in 10,000 kids, mostly girls, including Stella. She was diagnosed at age three. A U.S. lab found the telltale mutation on the X chromosome.
Your noon-hour look at what's happening in Toronto and beyond.
By signing up you consent to receive the above newsletter from Postmedia Network Inc.
A welcome email is on its way. If you don't see it, please check your junk folder.
The next issue of Your Midday Sun will soon be in your inbox.
We encountered an issue signing you up. Please try again
“Honestly, it took me 18 to 24 months to come to terms........
© Toronto Sun
visit website